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Adrenocortical cancer research at the University of Sydney

$6,500
65%
Raised toward our $10,000 Goal
25 Donors
Project has ended
Project ended on June 30, at 12:00 AM AEST
Project Owners

ACC WALK 19 MAY 2019

May 10, 2019

COME WALK WITH ME:  We only have 8 days to go before the walk.  Hopefully the weather will be kind to us next Sunday the 19th. 

This is a reminder to ask those who are going to walk with me to RSVP through the following site:

accwalkcanberra@gmail.com

I am looking forward to seeing you between 1.00 and 1.15 pm prior to the walk commencing at 1:30 pm.

The Autumn leaves may not be on the trees, but the beauty of the lake and surrounds are always something to behold.  Gotta love Canberra and what about the exercise.

 

CHANGE OF TIME FOR MY ACC WALK

April 29, 2019

 

Hello everyone – we now have only 20 days until my walk around the lake on 19 May.

I hope by now that everyone has seen or heard about the change of time for the start of the walk, which is due to another competing walk at the lake.

WE WILL NOW BE STARTING THE WALK AT 1:30 PM AND ASKING FOR PEOPLE TO ARRIVE BETWEEN 1.00 -1:15 so please make the changes in your calendars/diary’s.

Also if you haven’t already done so, please RSVP through accwalkcanberra@gmail.com

Again, thanks to all who have already donated to my crowdfunding site.  Your generosity is overwhelming.

APRIL UPDATE

April 05, 2019

 

APRIL – was when I first started my ACC journey.  Journey - meaning distance travelled in specific time, trip, voyage, expedition, ride, excursion trek….   Not sure this best describes people who are diagnosed with Cancer and fighting for their life!! 

 

It took 12 months for the doctor to find a tumour on my adrenal gland.  Then thanks to Canberra doctors it was removed, fortunately not by keyhole surgery, but that’s another story!

 

Then to find SOMEONE, ANYONE who knew SOMETHING, ANYTHING about this awful “orphan” cancer – Adrenal Cortical Carcinoma (ACC) – knowing by then that ACC affects only one in a million people and the survival rate is extremely low.

 

Four years of Chemotherapy and I am still having regular PET scans and of course doctor’s visits.  I no longer have a working adrenal gland, and now have Addison’s disease, so take steroids daily to keep me alive, but what’s a few pills, I am still here!!

 

All thanks to two Professors in Sydney, one of which, Professor Sidhu is doing research to find a cure for ACC.  They, along with my beautiful family and friends, are my support group.  I only know 4 others in Australia with ACC, which is why I am more determined than ever to try and raise awareness and much needed funds for research.

 

SO PLEASE help and give to this very rare cancer and please share this post with your friends.

 

Thanks to all who have already donated.  

 

 

 

 

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