APRIL – was when I first started my ACC journey. Journey - meaning distance travelled in specific time, trip, voyage, expedition, ride, excursion trek…. Not sure this best describes people who are diagnosed with Cancer and fighting for their life!!
It took 12 months for the doctor to find a tumour on my adrenal gland. Then thanks to Canberra doctors it was removed, fortunately not by keyhole surgery, but that’s another story!
Then to find SOMEONE, ANYONE who knew SOMETHING, ANYTHING about this awful “orphan” cancer – Adrenal Cortical Carcinoma (ACC) – knowing by then that ACC affects only one in a million people and the survival rate is extremely low.
Four years of Chemotherapy and I am still having regular PET scans and of course doctor’s visits. I no longer have a working adrenal gland, and now have Addison’s disease, so take steroids daily to keep me alive, but what’s a few pills, I am still here!!
All thanks to two Professors in Sydney, one of which, Professor Sidhu is doing research to find a cure for ACC. They, along with my beautiful family and friends, are my support group. I only know 4 others in Australia with ACC, which is why I am more determined than ever to try and raise awareness and much needed funds for research.
SO PLEASE help and give to this very rare cancer and please share this post with your friends.
Thanks to all who have already donated.